Patients’ reflections on care at the Reconstructive Surgery Programme
in Reconstructing lives
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Chapter 4 looks at patients’ reflections on the care they received in the RSP, told years after being discharged from the hospital. Aside from reporting on programme strengths, particularly in providing a healing environment, patients shed light on the gaps that need to be addressed if the programme is to achieve its goal of delivering patient-centred care. The reader is presented with patients’ expressions of relief and gratitude for the care they received at the hospital. They describe beneficial aspects of the treatment that extend far beyond medical care, encompassing the relationships developed in the hospital setting. Furthermore, the chapter re-examines the notion of “unrealistic” patient expectations. When framed from the patients’ perspective, this notion appears flawed. In contrast to staff perceptions, the vast majority of patients report being fully satisfied with their treatment. For those patients who did express some degree of dissatisfaction with the programme, it was mostly related to a mismatch of priorities they have with the RSP. They spoke primarily about what they perceive as a neglect of the aesthetic dimension of care and the RSP’s emphasis on functional improvements. These perceptions highlighted gaps in the patient-centred approach and questioned the dominant assumption that functional outcomes alone improve patients’ lives.

Reconstructing lives

Victims of war in the Middle East and Médecins Sans Frontières

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