Cinzia Greco
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Index

activism 14, 17, 52, 55, 57, 60, 62, 159, 164, 173
advocacy 58–9
advocacy groups 58–9
aesthetics and aestheticisation 4, 16, 99–103, 111–15, 121, 124n12
Agenzia Italiana del Farmaco/Italian Medicines Agency 41
Andersen, Rikke Sand 17–18
anxiety 125
Arteaga Pérez, Ignacia 170n1
assemblages 26n5, 26n6, 147, 170, 182
articulations of 7–10
biographical 8, 10, 23, 24, 53, 68–9, 122, 135, 146, 147, 173, 174
conceptualisation 5–7, 73, 171–4
cultural-political 8, 10, 174
disease–society 180–2
levels 7–8
medical-bodily 7–9, 23–4, 73, 98, 146, 171–3
organisational 8, 28–9
relational 8, 10, 25, 149, 168, 181
strategic 171
time-limited 6
associations and support groups 57–63, 69, 159, 173
Associazione italiana di oncologia medica (Italian Association of Medical Oncology) 84–5
asymmetrical bodies 59–60, 111, 116–20, 121–2, 151, 172
Australia 124n15
awareness raising 14, 56–7
 
Banerjee, Dwaipayan 66
Bartky, Sandra Lee 150
beauty and beauty standards 97, 106, 109, 119, 121, 122, 150
Belgium 70–1n5
Bell, Kirsten 13, 62, 64
Berlant, Lauren 65–6
bilateral mastectomy 124n14
biographic disruption 126
biographical assemblages 10, 23, 24, 53, 68–9, 122, 135, 146, 147, 173, 174
biographical containment 66–7
biomedical language 180
biomedical uncertainty 127, 156–7
biomedicalisation 12
biomedicine 9, 16, 17, 23–4, 73, 171–3, 179
biopsy 128–30
biosimilar medicines 41
biosociality 169
bodily integrity 98
body, public presentation of 24
body alterations 97–8
aesthetics and aestheticisation 99–103
Böhm, Katharina 37
Botswana 179
BRCA 1 and 2 mutations 12, 77–8
Breast Cancer Action 54, 54–5, 87
Breast Cancer Awareness Month 51–2, 54, 55, 58
Breast Cancer Now 57, 103–4
breast lumps, ambiguity of 128
breast reconstruction 20, 24, 38, 47, 59, 98, 120, 132, 172, 175–6
aesthetics and aestheticisation 100–3, 115–16, 121, 124n12
benefits 101–2
conservative 108–9
contralateral symmetrisation 104, 106–10
definitions 101
financial considerations 104–5, 108
France 100–2, 105
importance of 110–12
institutional context 103–6
Italy 104–5, 123n6
negative experiences 106–10
negotiating 106–12, 116
obstacles faced 105–6
partners and 150–1
post-reconstruction body experiences 112–16
practical purposes 121–2
rejection of 116–20, 122
and self-image 112
surgeon–patient relationship 107–8
and survival time 101
United Kingdom 103–4, 120–1, 123n6
waiting times 105
breast surgery 8
breast-cancer-ization 13, 182
Brenner, Barbara 54–5, 87, 137
Brexit 40
bricolage-assemblages 6, 8, 9–10, 23, 24, 29, 47–8, 49, 146, 174
Brinker, Nancy 53
British Medical Association 31
Buchanan, Mary 56
budgetary limitations 29
Buy My Cancer project 72, 94
 
cancer
contemporary construction of 65–6
refusal to mention 1–2
Cancer Drugs Fund (CDF) 40
cancer knowledge, gaps in 9
cancer prevention conferences, communication strategies 62
cancer progression, linear model 74, 75, 77
cancer regimes 11–12
Cancer Research UK 56
cancer schemata 11
cancer survivorship, breast cancer as a social paradigm for 13–14
capitalisation 66
care, individualisation of 63
care work 155
cases diagnosed, EU 2
cause-related marketing 54–5
Centres de lutte contre le cancer (CLCC – Centres for the fight against cancer) 38–9
Centres Hospitaliers Universitaires (CHU – University Hospital Centres) 38–9
cervical cancer 26n8
chemotherapy 8, 11, 77, 84–5, 95n4, 97, 140–1, 155–6, 158, 159–60
Chenhall, Richard D. 5
childcare 156, 160
children 155–8, 160
chronicity 74, 88–9, 96n6, 96n8
Clinical Commissioning Groups (CCG) 30
clinical trials 50n8
Collier, Stephen J. 172
communication strategies, cancer prevention conferences 62
Community Care Act, 1990 30
comparative stance 18–19
conservative surgery 99–100
containment strategies 66–7
contralateral symmetrisation 104
control
maintaining 131–5
retaining 125
coping strategies 68
containment 66–7
refusal to mention 1–2
cosmetic surgery 28, 121, 123n9
couples, post-diagnosis 149, 150–4, 169
couples therapy 151
COVID-19 pandemic 49, 105, 179
Crompvoets, Samantha 112
cultural context 5
cultural discourses 7, 9
cultural-political assemblages 8, 10, 174
 
deaths 2
Del Vecchio Good, Mary-Jo 72
Deleuze, Gilles 5–6, 9, 22, 26n5
Denmark 18
diagnosis 2, 11, 13
and emotional preparation 130
in situ cancers 76–7
metastatic breast cancer 141
shock 24, 65, 67
and uncertainty 127–31, 145–6
diagnosis-treatment pathways 45–7, 48
diagnostic pathways 128–31
diagnostic technologies 128
disease 4
disease–society assemblages 180–2
diversity 21
divorce and separations 150–2
doctor/patient alliances 59
drug prices 39–41, 91–2, 179, 182n1
drug therapies 8
drugs, life cycle management 96n7
ductal carcinoma in situ 77
Duff, Cameron 155
 
early retirement 163–4
early-stage breast cancer 74, 78, 82, 85–6, 93, 126, 145, 178
economy of hope 72–3, 94
Eisenstein, Zillah 2
EMA 41
embodied transformations 15–16
Engelberg, Miriam 85
Ernaux, Annie 148, 168–9
Esserman, Laura J. 77
Estée Lauder 51–2, 70n1
ethnography 3, 4–5, 17
Europa Donna 56, 87
European Institute of Oncology 36
European Union, cases diagnosed 2
experiences 3–5, 25, 182
and gender 175–7
individuality of 147
sharing 60–1
external prosthesis 118–19
 
family relationships, post-diagnosis 25, 149, 154–9, 169, 170n1
fashion industry, discrimination 120
fashion-beauty complex 150
femininity 15–16, 175–6, 177
Ferzacca, Steve 137
fieldwork 19–22
financial considerations, breast reconstruction 104–5
financial stratification 91–2
financial uncertainty 156–7
Fisher, Bernard 99
Fitts, Karen 115–16
Fluorouracil 95n2
Forrest, Patrick 75
Foucault, Michel 26n6
France 2, 17, 19, 21, 55
associative landscape 58–60, 61
breast reconstruction 100–2, 105
cancer services available 38–9
childcare 156
drug prices 39, 40
funding 84
healthcare system 23, 28, 37–9, 48–9, 177–80
hormone therapy 137
patient mobility 21, 43, 44, 45, 49, 143
screening programme 75
Vivre comme avant 55–6
friendships, post-diagnosis 149, 159–62, 169
funeral planning 157
 
Gagnon, Marilou 141
Garrido, Ignacio 103
Geertz, Clifford 4
gender
and illness 175–7
norms 25n1, 175–6
prism of 15–17
roles 149
genetics 12
Germany 37
global financial crisis, 2008 34
Global South 17, 28, 180
Guardian 63–4
Guattari, Félix 5–6, 9, 22, 26n5
 
Hadji, Peyton 137
hair loss 97, 158
Haley, Charlotte 70n1
Halsted, William 99
Hamarat, Natasia 70–1n5
Haraway, Donna 98, 171
Health and Social Care Act, 2012 50n1
health expenditures, cuts 63
health insurance 34, 37–8, 48, 178–9
healthcare systems
budgetary limitations 29
comparison 177–80
cost-benefit analysis 178
diagnosis-treatment pathways 45–7, 48
ethnographic engagement with 17
France 28, 37–9, 48–9, 177–80
improvisation 179, 180
Italy 28, 33–7, 48, 177–80
navigating 9–10, 27, 41–8, 49
patient mobility 42–5, 49
privatisation 18, 23, 28, 30–2, 177, 179
transformations of 18
United Kingdom 28, 29–33, 49, 177–80
universal 28, 29, 33, 49, 177–80, 178
USA 28, 48, 177–8
Hedgecoe, Adam 95n3
Herceptin 95–6n5
see also trastuzumab
HIV/AIDS 89
Holmes, Dave 141
hormonal therapies 8, 78, 79–82, 84–5, 97, 134, 136–40
hormone-responsive tumours 80, 88
hormones, role of 79–80
Hortobagyi, Gabriel N. 136
Hunleth, Jean 42, 50n6
 
illness 4, 65–7
illness narratives 5, 20, 126–7
India 66
information seeking 132–5, 146
innovative treatments, search for 47
international discourse 23
internet, the 132–3
interviews 20–2
isolation 58
Italy 2, 17, 19, 21, 23, 55, 75
accreditamento (accreditation system) 33–4
associative landscape 58, 60
breast reconstruction 104–5, 123n6
Catholicism 67
childcare 156
containment strategies 66–7
drug prices 39, 40–1
five-year cancer plan 36
health insurance 34
healthcare system 28, 33–7, 48, 177–80
hormone therapy 137
intramoenia 33–4
north–south divide 19, 34–7, 44–5, 104–5
patient mobility 21, 23, 35–6, 43, 44–5, 49, 143
practices of silence 25–6n3
private sector providers 33–4
public healthcare expenditure 34
Titolo Quinto reform 35
universality 33
 
Jain, S. Lochlann 177–8
Jay, David 51, 69
Jordan, Craig 80, 81
 
Kadcyla 91, 96n10
Keating, Peter 80
Kellaway, Kate 64
Klawiter, Maren 11–12
Kleinman, Arthur 3–4, 5
knowledge management 132–5
knowledge sharing 60–1
Kolehmainen, Marjo 151
Kushner, Rose 100
 
labour pain 4
Lahti, Annukka 151
language, biomedical 180
League against Cancer 39
Livingston, Julie 179
Lorde, Audre 100, 125, 145–6
Löwy, Ilana 10–11, 74, 77, 92, 127
lymphoma 161–2
 
McCann, Hannah 176
Macmillan Cancer Support 56
magical thinking 1
magnetic resonance imaging (MRI) 129
male breast cancer 15, 25n1
male gaze 114
Marchesi, Simone 48
Marcus, George E. 6
Marie, Marc 148, 168–9
Marie Curie charity 56
marital relations, post-diagnosis 149, 150–4, 169
Martin, Daryl 83–4
mastectomised bodies 69
mastectomy 76–7, 99–100, 102–3
bilateral 77–8, 124n14
radical 99
medical innovation 23
medical leave 164
medical professionals, mobility 43
medical tourists 42
medical-bodily assemblages 7–9, 23–4, 73, 98, 146, 171–3
medicalisation 12
Medicines and Healthcare products Regulatory Agency 40
memory 157
memory boxes 157
menopause, early 167
Merrild, Camilla Hoffmann 18
metastatic breast cancer 12, 14, 20, 28, 63, 96n8, 96n9, 126, 146–7, 160–1
associative landscape 61–2
chronicisation 85–9, 142, 145
diagnosis 141–5
experimental treatments 178–9
financial impact 143–4
living with 142, 181–2
pain management 142
survival time 141–2
treatments 82–3, 92–4
uncertainty 126, 141–5
methodology 19–22
Milan 36, 56
Mitchell, David T. 113
Mol, Annemarie 43
Monbiot, George 64
moral growth 68, 145, 168, 173–4
Mulvey, Laura 114
 
National Health Service (NHS) 21, 29–33, 49, 177–80
creation 29–30
equality in access 30
funding 31
GPs 30
Integrated Care System 31
internal mobility 30, 32
privatisation 30–2
referral system 32
National Institute for Health and Care Excellence (NICE) 32, 40, 91–2, 103, 137
NED (No Evidence of Disease) 78, 136
neoadjuvant therapy 82
neoliberal ideology 51, 66, 68, 156
New York Times Magazine 51
 
oesophageal reconstruction 113
oncological drugs, cost 39–41
oncoplasty 102–3
Ong, Aihwa 172
online activism 60, 62
optimist rhetoric, negotiating 63–9, 70
organisational assemblages 8, 28–9
ovarian cancer 26n7
 
pain management 142
Pancreatic Cancer Action 13
patient mobility 23, 42–5
France 21, 43, 44, 45, 49, 143
Italy 21, 35–6, 43, 44–5, 49, 143
UK 21, 43–4, 45, 49
personalisation regime 12
personalised treatments 12, 78, 78–85, 94, 179
experience of 89–93
Peters, Vera 99
pharmaceutical landscape 73
phenomenological perspectives 3
pink ribbon discourse 10, 13, 19, 23, 51–2, 53–7, 63–4, 69, 70n1, 173
pink-washing 54, 55, 63–4, 70n2
Poland 72
Pollock, Allyson M. 31, 49
Pop, Cristina A. 26n8
post-cancer care 63
post-cancer enhancement rhetoric 64–6, 69
post-cancer life 64–9, 69
post-diagnosis equilibrium 181
post-diagnosis life 148–59, 168–70
couples 149, 150–4, 169
family relationships 149, 154–9, 168–9, 170n1
friendships 149, 159–62, 169
work and working life 149, 162–8, 169
post-mastectomy bodies 98
aesthetics and aestheticisation 99–103
asymmetrical 59–60, 111, 116–20, 121–2, 151, 172
post-reconstruction body experiences 112–16
Price-Robertson, Rhys 155
Prieto, Francisca 19
privatisation 18, 23, 28, 30–2, 177, 179
professional lives and identities 162–8
psychoanalytical perspectives 3
psycho-oncology 64
 
quality of life 85, 90, 145
 
radical mastectomy 99
radiotherapy 8, 11, 77
Raza, Azra 75
rebirth experience 64–6, 68
recomposition 126
referral systems 32
relapse
fear of 180
probabilistic estimates 10
risk 8, 24, 136–7
relational assemblages 8, 10, 25, 149, 168, 181
religion 67
renewal, discourses of 64–6, 69
risk 1, 2
relapse 8, 24
reduction 137, 146
Ristovski-Slijepcevic, Svetlana 62
ritual 4
Roderick, Peter 31, 49
Romania 26n8
 
Saka, Erkan 6
SCAR (Surviving Cancer: Absolute Reality) Project 51, 69
Schiebinger, Londa 15
screening 2, 10–12, 39, 43–4, 74–6, 100, 128
Seeman, Don 3, 5
self-care 155
self-image 112
self-improvement 62–3, 167–8, 173–4
self-worth 115
Senior, Kate 5
separations and divorce 151–2
service distribution 32
sexualisation 15
silence, practices of 25–6n3
Skeide, Annekatrin 4
Skelly, Julia 122
Snow, Stephanie 30
Snyder, Sharon L. 113
social attention 2
social gaze 114
social insurance 28, 30, 37, 177, 178
social life, post-diagnosis 159–62
social norms, presentations of 4
social roles 168–9, 174, 176
social scripts 13–14
sociality 25
Sontag, Susan 53, 127
sources 22
states of being 6
Steinmetz, Emily 42, 50n6
strategic assemblages 171
Sulik, Gayle A. 176
surgery 11, 16, 20, 24, 75–6, 99–100
surgical radicalism 78
survival rates 13
survival time 73, 87, 93–5, 101, 136, 141, 141–2
Susan G. Komen Foundation 53–4, 55, 173
 
tamoxifen 79–81, 95n2, 137, 138, 139, 141
targeted therapies 79–84, 80–2, 93–4
techno-body, the 73
therapeutic pathways 172
therapeutic script 11
Timmermann, Carsten 81, 89, 95n2
Tóibín, Colm 71n7
Toon, Elizabeth 70n4, 96n8
Tørring, Marie Louise 17–18
trastuzumab 81–2, 83, 91, 178
see also Herceptin
treatments 11, 73–8, 93–5, 125–6, 181
cost 23, 28
cost-benefit analysis 178
elective component 47
experience of personalised 89–93
experimental 178–9
gaps in 23
linear model 92
metastatic breast cancer 83, 92–3
mosaic of 78
negotiating 135–41, 174
personalised 12, 78, 78–85, 89–93, 94
search for innovative 47
side effects 138–41, 146, 158, 159–60, 165, 167, 173
standardisation 8–9, 47–8
understanding 133
and working life 162–8
triple-negative breast cancer 84–5, 88
Trusson, Diane 64
tumorectomy 76
Turner, Victor W. 4
 
uncertainty 90–1, 125–7, 145–7
biomedical 127, 156–7
containing 131–5
diagnosis and 127–31, 145–6
financial 156
metastatic breast cancer 126, 141–5
United Kingdom 2, 17, 19, 21
associative landscape 58, 60, 61, 61–2, 63
breast reconstruction 103–4, 120–1, 123n6
childcare 156
drug prices 39–40
GPs 30
healthcare system 23, 28, 29–33, 49, 177–80
hormone therapy 137
patient mobility 21, 43–4, 45, 49
screening programme 75
unequal distribution of services 32–3
United States of America 17, 25
healthcare system 28, 48, 177–8
pink ribbon discourse 23
unpredictability 90
 
Veronesi, Umberto 36, 56, 99–100
Viney, William 46
Vivre comme avant 55–6
 
War on Cancer 72–3, 94
Wegenstein, Bernadette 123n3
Western Europe, breast cancer in 17–19
Wilke, Hannah 97, 122
Willen, Sarah S. 3, 5
womanhood, breast cancer as attack on 150
work and working life, post-diagnosis 25, 149, 162–8, 169
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Assemblages of cancer

Experiences and contexts of breast cancer in the UK, France and Italy

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