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making of health conscious citizens’, Critical Public Health , 22:1 (2012), 99–105; Frank Huisman and Harry Oosterhuis, ‘The politics of health and citizenship: Historical and contemporary perspectives’, in Frank Huisman and Harry Oosterhuis (eds), Heath and Citizenship: Political Cultures of Health in Modern Europe (London: Pickering and Chatto 2014), pp. 1–40. 35 On these themes see Petersen and Lupton, The New Public Health; Virginia Berridge and Alex Mold, ‘Professionalisation, new social movements and voluntary action in the 1960s and
consent, such as the purpose of the test, its accuracy, how it is carried out, any risks for the child, how long the sample will be stored for and who will have access to the test results and the blood sample and for what DONNELLY 9780719099465 PRINT.indd 142 12/10/2015 15:59 Retention and use of human biological samples 143 purposes. At the time the newborn screening programme was introduced in the 1960s, implied consent was the norm in common clinical practice. Therefore the information outlined above was not commonly sought by parents or offered by those