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A Research Handbook for Patient and Public Involvement Researchers Chapter 1: Patient and Public Involvement (PPI) and the research process Andrew C Grundy Chapter overview This chapter defines and introduces the different stages of the research process: from identifying a problem, to reviewing the literature; then developing a research question; designing a study; obtaining funding and ethical approval; recruiting participants; collecting and analysing data; and reporting and disseminating findings. This chapter will outline how users of health services, their
(Lawrence, 2008). The researcher may create art such as writing poems based on interview transcripts or performing participants’ stories. He or she may analyse artworks such as movies, fictional literature or paintings as part of the research data. Alternatively the researcher could engage the research participants in the creating of art. For example, participants may be directed to create photographic images or engage in collage-making to express their understanding of a phenomenon. As Leavy (2009: 11) stated, ‘The arts simply provide qualitative researchers a broader
each of our focus groups. In the discussion of these that now follows, we posit a continuum between sociotropic and personal concerns which many of our participants invoked, if often implicitly, in the context of their conversations (on this, see, for example, Huddy et al. 2002 ; Joslyn and Haider-Markel 2007 ). Where the former refers to those threats confronting residents of one’s society in general, the latter reflect
operate beneath the surface – appears to exert a powerful influence within the discipline of political science. As political scientists we should be open to the possibility that we have been trained to categorise ‘economy’ or ‘economic’ in a certain way, but others may not categorise it in the same way. I accept that because the first response many participants in this study give to the question ‘how would you define the economy?’ is that it is ‘to do with money’, that at some level most people understand ‘the economy’ to be about the material realm, money or what
Introduction This chapter explores the watery and water-based method of (self) interviews at sea, through the example of surfing. An interview with a view, whereby participants are given a surfboard with a waterproof camera and question sheet attached to it. Allowing the researcher to investigate certain topics, while also observing the surfer in situ, this method has been used in an attempt to better understand everyday human–water relations or, more specifically, human surfer–water relations. For surfers, who are most at home in their
come to make merry and most of the local inhabitants understand little of what the gentlemen have come to do’.4 We must count King Willem iii among ‘most of the local inhabitants’, as he had no interest whatsoever in the congress or its participants. In the monarchical states that had hosted previous congresses, members of the royal house had put in an appearance. Willem iii, known for his occasional breaches of decorum, had absolutely no desire to attend the statistical congress. The rules of international courtesy, though, required him to grant an audience. The
tip of his rolled-up flag a few centimetres from the participant’s back. At the Sixth Court’s Tua Ya Pek’s invitation, clutching the wedge of joss money in his right hand, he then ascended the three metal steps next to the coffin and carefully climbed inside, standing momentarily before lying down and disappearing from view to all except those standing immediately beside the coffin. The heavy coffin lid was then carried over, and the man sealed inside. The Sixth Court Tua Ya Pek then circled the coffin once again hitting its sides with his flag, and then ascending
resembles the retro-futurist aura of Bladerunner in which radioactive ‘kipple’ rain provides a repetitive presence to the ambient possibility of future crimes generated by the science fiction telepathy of Phillip K. Dick's Minority Report (Dick 2002 ). Other participants included are a psychic called Neptune Sweet aka Electric Djinn aka OmniJenn aka Jennifer Berklich; a hacker called Ryan Holsopple; the Australian art critic for ARTnews , Peter Hill; as well as Glen Einbinder and others associated with Art Codex and ABC No Rio art and activism groups
5 Refusing the demand for sad stories Introduction This chapter questions mainstream approaches to migrants as tellers of sad stories about their individual migration journeys. With this aim, it introduces performative methods used to de-construct the processes of migrantification through the creation of scenes. We argue that such methods, and the commitments to self-organisation and ‘speaking back’ that accompanied them, re-position migrants as full and critical participants in collective narrative processes. Within this context, migrants played the role of co
Black Britishness, and Black British histories, is an integral part of British racial hierarchisation. This chapter contextualises my participants as not just Black, nor just Black and middle class, but rather as Black British middle-class subjects. Through this contextualisation, I look at how the participants construe the ‘British’ aspect of their identities and use cultural consumption as a means of resistance to this ‘profound forgetfulness’ that plagues the British racial structure. The changing same. But different? It has been more than twenty years since