Search results
This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods, and comprehensively covers all the basics needed for large-scale health research projects: systematic reviews; research design and analysis using both qualitative and quantitative approaches; health economics; research ethics; impact and dissemination. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). The handbook clearly outlines research practices, and gives an insight into how public and patient representatives can be involved in them and shape decisions. Each chapter ends with a reflective exercise, and there are also some suggested sources of additional reading. People who get involved in health research as experts from experience now have a textbook to support their research involvement journey.
Living Research Two: Emotions and research Operation Vaken's posters, newspaper adverts, immigration surgeries and mobile billboards were a dramatic display, designed to reassure some citizens that the government was ‘getting tough’ on irregular immigration. However, the campaign also increased worries and anxiety. The survey carried out for us by Ipsos MORI of a nationally representative sample of 2,424 people (for
Research dissemination and impact Helen Brooks and Penny Bee Chapter overview Research activity does not finish when data analysis is complete. Once research findings are available, researchers still have obligations to fulfil. These obligations include sharing the findings with different audiences and ensuring maximum impact from the study. A Research Handbook for Patient and Public Involvement Researchers Chapter 10: The process of sharing research learning with others can be an enjoyable but challenging one. Often it is referred to as dissemination, but
Living Research Four: Ethics in uncomfortable research situations The ethical bottom line for sociologists is, ‘first, do no harm’. This can mean taking care that how we present our research does not add to raced, classed and gendered oppressions, and equally, avoiding a well-meaning shrug and a response of ‘It's complicated’. At its best, sociology takes seriously the personal, everyday struggles and inconsistencies of
Living Research One: Why are we doing this? Public sociology and public life This short section is a conversation between an activist involved in the project 1 and a member of the research team. Each reflects candidly on the value of the MIC project to civil society and on social research (and socially engaged research) in general as a ‘public good
Living Research Three: Migration research and the media One of the motivations for our project was to use research to intervene in public debates on immigration by providing alternative perspectives on what is often a polarised and entrenched debate where the perspectives of migrants and racially minoritised communities barely feature (Conlan, 2014 ; Migrant Voice, 2014 ) and where, as we found
Living Research Six: Collaborations Our research on Operation Vaken was rooted in several different forms of engagement, with the hope not only of intervening in social injustices (see Passy, 2001 ) but also of producing knowledge differently; a less elitist and collaborative knowledge. The root of the word collaboration, from the Latin collaborare – to work together – carries ambivalence. To collaborate can also suggest betrayal, even
Living Research Five: Public anger in research (and social media) At our end-of-project conference, one participant said that the event had made her think that ‘when outraged by something’ she would try to research it; ‘combine activism with academia and your sociological imagination’. Strikingly, this comment captured much of what brought us together to develop the research discussed in this book. In this section, we
Principles of Ethical Research Owen Price and Lauren Walker Chapter overview By definition, research seeks to explore something that is unknown. This uncertainty means there is always the possibility of harm arising from research. There are many examples in both near and distant history of serious harm to participants as a consequence of research, including permanent disability and death. This is why it is of great importance that research projects are informed by sound ethics, properly planned, approved by an independent ethical board and rigorously monitored
This chapter is centred on my research into sound identities and musical practices in Basilicata, which started at the end of the 1980s. Ever since, I have used performing music as a form of research by way of active participation as a musician in the local scene. Performance-based research has a long history within ethnomusicology (Cottrell 2007 ). One of its most famous formulations is found in the concept of bimusicality proposed by Mantle Hood, who considered musical practice a privileged way to approach a foreign musical culture ( 1960 ). As a native