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Designing and road testing new measurement scales

Involvement Researchers Evaluating and Quantifying User and Carer Involvement in Mental Health Care Planning (EQUIP): Co-development of a new Patient-Reported Outcome Measure (PROM) Items for the EQUIP PROM were developed from 74 interviews and 9 focus groups conducted with service users, carers and mental health professionals recruited from two large NHS Trusts. From these data, 70 items (potentially relevant questions) were developed. First, face validity was examined with a mixed sample of 16 members of a Service User and Carer Advisory Group (SUCAG). Nine items were

in A research handbook for patient and public involvement researchers

involvement be instilled • How in the care planning process? is the role and influence of individuals, teams and organisational • What factors in achieving high quality user-involved care planning? are carers’ experiences of the care planning process for people • What with severe mental illness? are professionals’ perceptions and experiences of delivering • What mental health care planning and involving service users and carers A Research Handbook for Patient and Public Involvement Researchers In relation to EQUIP, qualitative research methods were used to explore current

in A research handbook for patient and public involvement researchers

, you’re not expected to know what all this jargon means. Carer 1013, male, 27, cares for a brother with a diagnosis of bipolar disorder A Research Handbook for Patient and Public Involvement Researchers Figure 26 Examples of themes from an EQUIP paper exploring the role of carers within the care planning process Confidentiality as a barrier to involving carers in mental health care planning So it was like huge barricades up around this trivial information, trivial stuff. So… that in itself as you can imagine, was intensely upsetting and, and infuriating. But it

in A research handbook for patient and public involvement researchers
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Architecture, asylum and community in twentieth-century mental health care

The Mansions in the Orchard project, funded by a Wellcome Trust People Award for Public Engagement, ran from September 2013 to March 2015. On behalf of the Bethlem Museum of the Mind, the authors carried out new historical research and documentation, alongside public engagement activities. The project addressed the largely undocumented twentieth-century history of inpatient mental health care in Britain through the

in Communicating the history of medicine

continuous stakeholder engagement for research dissemination. Introduction Mental health care resources are finite. In order to ensure service users receive the highest quality health care, evidence about the most effective and acceptable treatments needs to be fully incorporated into health care policy and practice. However, we have known for a long time that this is not happening as well as it should be within health services and that research evidence is not being transferred sufficiently to routine clinical practice both in the UK and across the world. This is often

in A research handbook for patient and public involvement researchers

statistics: and sex and drugs and rock ‘n’ roll. London: Sage. Salsburg, D. (2001) The lady tasting tea: how statistics revolutionized science in the twentieth century. New York: W.H. Freeman. Grundy, A.C., Bee, P., Meade, O., Callaghan, P., Beatty, S., Ollevent, N. and Lovell, K. (2016) Bringing meaning to user involvement in mental health care planning: a qualitative exploration of service user perspectives. Journal of Psychiatric and Mental Health Nursing 23:12-21. 70 BEE (RESEARCH) PRINT.indd 70 11/05/2018 16:15

in A research handbook for patient and public involvement researchers
Science shops and policy development

questions (such as, for example, the issue of local air quality) were the key elements of this EC call. The call was widely publicized by the network and a total of twenty-seven eligible applications were received, indicating the strength and diversity of the science shop movement, with four projects eventually being funded. These dealt with health effects of noise from wind turbines; cycling and air pollution; optimizing public transport for the elderly; and mental health care for immigrant communities. Even where these applications were unsuccessful, productive networks

in Knowledge, democracy and action
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Perceiving, describing and modelling child development

-specific’ legislation to be passed in the UK, demonstrating the significance of the autism diagnosis to reframing approaches to mental health care, social welfare provision and individual rights in the UK. In 2013, EU Aims, a major initiative to develop new treatments for autism, received the largest grant for any mental health problem in the whole of Europe, revealing the cultural capital and potential for revenue

in The metamorphosis of autism

co-operation’ in the 1960s.70 The LMG originated in 1963, when the Student Christian Movement (SCM), the arm of the ecumenical movement concerned with higher education in Britain, commissioned the doctor and chaplain Andrew Mepham to survey the needs of medical school students. Mepham found that while theology students received lectures and seminars from visiting doctors, with some attending hospital courses on subjects such as mental health care, teaching hospitals made no systematic effort to allow medical students to receive lectures from theologians or other

in The making of British bioethics

’s epidemiological study offered new possibilities for the analysis of children’s developmental and psychological problems using social-psychiatric methods. Drawing from childhood psychosis research, it established autism, the major symptom of childhood psychosis, as a label that could be used in the rapidly changing landscape of mental health care for children. This label has stuck

in The metamorphosis of autism