the study will be disseminated to interested parties.
BEE (RESEARCH) PRINT.indd 130
health care managers
and policy makers
(e.g. NHS England)
(e.g. NICE and the
Department of Health)
A Research Handbook for Patient and Public Involvement Researchers
Key audiences implicated in this process usually include:
BEE (RESEARCH) PRINT.indd 131
Each of these audiences may be
began, doctors could only prescribe first
generation drugs. However local psychiatrists and service users wanted the
newer second generation drugs to be made available, as there was some
evidence that they were safe to use and were effective in reducing the
symptoms of schizophrenia, with less troublesome side-effects.
BEE (RESEARCH) PRINT.indd 75
However there was a big cost difference; the newer SGA drugs cost the NHS
around £1500-£2000 per person per year of treatment, compared to around
£100 a year for the FGA.
The research trial aimed to
Evaluating and Quantifying User and Carer Involvement in
Mental Health Care Planning (EQUIP): Co-development of
a new Patient-Reported Outcome Measure (PROM)
Items for the EQUIP PROM were developed from 74 interviews and 9 focus
groups conducted with service users, carers and mental health professionals
recruited from two large NHS Trusts. From these data, 70 items (potentially
relevant questions) were developed.
First, face validity was examined with a mixed sample of 16 members of a
Service User and Carer Advisory Group (SUCAG). Nine items were
and mental harm to service users and staff
(Bonner et al., 2002; Paterson et al., 2003;
Renwick et al., 2016). Use of physical restraint
is also expensive for the NHS (Flood et al.,
2008). Research that draws focus on the issue
and that may lead to policy changes reducing
restraint use could therefore have possible
benefits to both service users and society.
When weighing up risks against benefits, it is
important that the risks are not overstated
and participants are not denied the benefits
of making a contribution.
Justice – treat fairly and equally
skills can you offer a research team?
might the chapters in this book help you
and what other training might you need?
BEE (RESEARCH) PRINT.indd 23
References and further reading
1) Aldridge, J. and Derrington, A. M. (2012) The
Research Funding Toolkit: How to Plan and Write
Successful Grant Applications. London: Sage.
13) Hanley B. (2012) Involving the public in NHS, public
health, and social care research: Briefing notes for
researchers. Eastleigh: INVOLVE.
2) Allam S., Blyth S., Newman, A. and Repper, J. (2004)