Healthcare aims to be patient-centred but a large gap remains between the fine words and the reality. Care often feels designed for the convenience of the organisations that deliver it, and not enough around patients and their families, or even around the frontline staff who provide it. Why does this happen? What does it feel like? What can be done about it? This book stimulates reflection on these questions by listening closely to those at the frontline. It provides accounts from patients, carers and healthcare professionals who are patients about what it’s like when services get it right, and wrong, from birth up to the end of life. Quite simply, we want to draw upon the power of storytelling – which is increasingly valued as a tool for learning – to help policymakers and practitioners to understand how to deliver better care. We also hope to enlighten the general reader about how they might go about navigating “the system” while it remains imperfect. There is a growing literature of first-person accounts from patients and from healthcare professionals. This book differs by providing a collection of narratives of experiences of the NHS in England to paint a rich and varied picture. Alongside these narratives we provide some international context, and an overview of the history of moves towards a more patient-centred approach to care. We present the theory and practice of storytelling in the context of healthcare. We also seek to help the reader to draw out the practical learning from the individual accounts.
feels as if it is designed for the convenience of the organisations that deliver it, and not enough around patients and their families, or even around the frontlinestaff who provide it. Why does this happen? What does it feel like? And, most importantly, what can be done about it?
This book aims to stimulate reflection on these questions by listening closely to those at the frontline. It provides accounts from patients, carers and healthcare professionals who are patients about what it's like when services get it right and wrong, from birth up to
of the participants, as well as
the structures and histories of the investigated fields. Hall (1997) focuses
in particular on policy agents and how the actions of this group of people
are affected by the awareness that their work impacts the work (lives) of
welfare workers and citizens. In other words, welfare workers – the frontlinestaff – are affected not only by specific policy agendas but also by the fact
that their actions and decisions can have many important consequences
for the citizens whom they encounter. Furthermore, the actions of citizens
central concern (Joyce and Keenan, 2013 ; Mulkerrins, 2003 ; Parkinson, 2010 ; Zedner, 2004 ). Research conducted by COSC in 2014 highlighted concerns about a lack of empathy and understanding of the impact of crime on victims when they access front-line services. Adapt House Limerick note that ‘[i]t is the experience of women survivors that frontlinestaff often do not have the understanding of domestic abuse nor the sensitivity to the traumatic impact of abuse on the victim’ (Spain et al., 2014 : 14). As police are the first point of contact for many victims, it