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Designing and road testing new measurement scales

Involvement Researchers Evaluating and Quantifying User and Carer Involvement in Mental Health Care Planning (EQUIP): Co-development of a new Patient-Reported Outcome Measure (PROM) Items for the EQUIP PROM were developed from 74 interviews and 9 focus groups conducted with service users, carers and mental health professionals recruited from two large NHS Trusts. From these data, 70 items (potentially relevant questions) were developed. First, face validity was examined with a mixed sample of 16 members of a Service User and Carer Advisory Group (SUCAG). Nine items were

in A research handbook for patient and public involvement researchers

involvement be instilled • How in the care planning process? is the role and influence of individuals, teams and organisational • What factors in achieving high quality user-involved care planning? are carers’ experiences of the care planning process for people • What with severe mental illness? are professionals’ perceptions and experiences of delivering • What mental health care planning and involving service users and carers A Research Handbook for Patient and Public Involvement Researchers In relation to EQUIP, qualitative research methods were used to explore current

in A research handbook for patient and public involvement researchers

, you’re not expected to know what all this jargon means. Carer 1013, male, 27, cares for a brother with a diagnosis of bipolar disorder A Research Handbook for Patient and Public Involvement Researchers Figure 26 Examples of themes from an EQUIP paper exploring the role of carers within the care planning process Confidentiality as a barrier to involving carers in mental health care planning So it was like huge barricades up around this trivial information, trivial stuff. So… that in itself as you can imagine, was intensely upsetting and, and infuriating. But it

in A research handbook for patient and public involvement researchers

continuous stakeholder engagement for research dissemination. Introduction Mental health care resources are finite. In order to ensure service users receive the highest quality health care, evidence about the most effective and acceptable treatments needs to be fully incorporated into health care policy and practice. However, we have known for a long time that this is not happening as well as it should be within health services and that research evidence is not being transferred sufficiently to routine clinical practice both in the UK and across the world. This is often

in A research handbook for patient and public involvement researchers

statistics: and sex and drugs and rock ‘n’ roll. London: Sage. Salsburg, D. (2001) The lady tasting tea: how statistics revolutionized science in the twentieth century. New York: W.H. Freeman. Grundy, A.C., Bee, P., Meade, O., Callaghan, P., Beatty, S., Ollevent, N. and Lovell, K. (2016) Bringing meaning to user involvement in mental health care planning: a qualitative exploration of service user perspectives. Journal of Psychiatric and Mental Health Nursing 23:12-21. 70 BEE (RESEARCH) PRINT.indd 70 11/05/2018 16:15

in A research handbook for patient and public involvement researchers