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This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods, and comprehensively covers all the basics needed for large-scale health research projects: systematic reviews; research design and analysis using both qualitative and quantitative approaches; health economics; research ethics; impact and dissemination. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). The handbook clearly outlines research practices, and gives an insight into how public and patient representatives can be involved in them and shape decisions. Each chapter ends with a reflective exercise, and there are also some suggested sources of additional reading. People who get involved in health research as experts from experience now have a textbook to support their research involvement journey.

Matthew Hunt
,
Isabel Muñoz Beaulieu
, and
Handreen Mohammed Saeed

Entities and Advancing Data Accesses ’, Health Services Research , 45 : 5 ( Part 2 ), 1442 – 55 . Saeed , H. M. , Schwartz , L. and Hunt , M. ( 2022 ), ‘ Ethical Considerations Associated with Closing a Non-communicable Disease Program in a

Journal of Humanitarian Affairs
Helen Brooks
,
Penny Bee
, and
Anne Rogers

researcher positioning (Brooks et al., 2016): A Research Handbook for Patient and Public Involvement Researchers Trustworthiness of data and analysis HB and KR are health service researchers, SW is a Lecturer in Mental Health, KL is a Professor in Mental Health and AR is a Professor of Health Systems Implementation. As such, researchers had no therapeutic relationship with participants. The conceptual starting point of our study is one informed by a capabilities approach which recognises that social context and engagement with valued people, places and activities are

in A research handbook for patient and public involvement researchers
Helen Brooks
,
Penny Bee
, and
Anne Rogers

find themselves using in health services research: • In-depth interviews • Focus groups • Observations Service-user and carer involvement in qualitative research methods Interviews Qualitative in-depth interviews are useful for illuminating a range of perspectives from different types of participants. The types of qualitative interviews are illustrated in Figure 19. Figure 19 Types of qualitative interview Highly structured interviews - often with set response options, similar to a spoken questionnaire Semi-structured interviews - consisting of a range of

in A research handbook for patient and public involvement researchers
Helen Brooks
and
Penny Bee

public representatives engage in health services research and work meaningfully with academic and clinical research teams in true partnership. It has been co-written with service users and carers from the NIHR EQUIP research programme and aims to help other public and patient representatives increase their understanding and skills in research methods. Health research is incredibly important. It helps to develop and evaluate new treatments, improve patient safety, and identify the most effective ways to organize, manage, finance, and deliver high quality care. As a

in A research handbook for patient and public involvement researchers
Helen Pallett

://medium.com/@AmnestyInsights/unsocial-media-tracking-twitter-abuse-against-women-mps-fc28aeca498a (accessed 16 June 2020). 4 See, for example, J. M. Zhu, A. P. Pelullo, S. Hassan, L. Siderowf, R. M. Merchant and R. M. Werner, ‘Gender differences in Twitter use and influence among health policy and health services researchers’, JAMA Intern Med ., 179.12 (2019), pp. 1726–9. 5 Nesrine Malik, We Need New Stories: Challenging the Toxic Myths Behind Our Age of Discontent (London: Weidenfeld and Nicolson, 2019).

in The free speech wars
Abstract only
Kelly-Kate Pease

, “Extending Enforcement: The Coalition for the International Criminal Court,” Human Rights Quarterly , 33:4 (November 2011), 927–1032. 14 Durham, “The Role of Civil Society,” 12. 15 Kelly-Kate Pease, International Organizations , 5th edition (Upper Saddle River: Longman, 2012), 36. 16 Iram Ejaz, Shaikh Babar, and Rizvi Narjis, “NGOs and Government Partnership for Health Systems Strengthening: A Qualitative Study Presenting Viewpoints of Government, NGOs and Donors in Pakistan,” BMC Health Services Research , 11:1 (2011), 122–128; Michelle Keck

in Human rights and humanitarian diplomacy
Andrew C. Grundy

experiences, we can travel a long way towards improving the care that we receive. We asked people to talk about their positive experiences, what has worked well for them and also what could be improved. We gathered a great deal of information that has been to the EQUIP A Research Handbook for Patient and Public Involvement Researchers Garry’s story Reflective exercise opportunities are there for members of • What the public to get involved in health services research? there any stages of the research process • Are that are of particular interest to you? Why? • What

in A research handbook for patient and public involvement researchers
Martin D. Moore

improve their administration, and some GPs had even sought to explore general practice in terms of management theory. 114 Developments within British medical discourse and practice were also of importance. Psychologically oriented theories emerging in the late 1950s emphasised professional fallibility and reflexivity, whilst the NHS's close connection with research saw major figures in British clinical and health services research promote techniques of review as central to efficiency and efficacy. 115 In fact, some doctors saw diabetes as a site

in Managing diabetes, managing medicine
Scott L. Greer

-Discrimination’ . In Routledge Handbook of the Politics of Brexit , edited by Patrick Diamond, Peter Nedergaard, and Ben Rosamond, 118–133 . Abingdon: Routledge. Gaventa , J . 1982 . Power and Powerlessness: Quiescence and Rebellion in an Appalachian Valley . Urbana, IL : University of Illinois Press . Glinos , Irene . 2012 . ‘Worrying about the Wrong Thing: Patient Mobility versus Mobility of Health Care Professionals’. Journal of Health Services Research & Policy , 17 : 4 , 254–256 . Greer , Scott L . and Eleanor Brooks . 2018 . ‘Termites of Solidarity in

in The European Union after Brexit