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Margaret Brazier and Emma Cave

. The shocking incident at Northwick Park continued a trend of diminishing confidence in the regulation of research. In 2000, inquiries were held into allegations that research was carried out on newborn babies without parental consent in a hospital in North Staffordshire. 6 Scandals surrounding retention of body parts originated in Bristol and Liverpool with evidence of children’s body parts being retained for research without their parents’ consent or knowledge. 7 And in 2010 Andrew Wakefield was struck off the medical register for serious professional misconduct

in Medicine, patients and the law (sixth edition)
A Qualitative Panel Study and workplace studies
Torben Krings, Elaine Moriarty, James Wickham, Alicja Bobek, and Justyna Salamońska

2 Researching migration: a Qualitative Panel Study and workplace studies In this chapter, we outline the research methodology of our study. The core of the research was a Qualitative Panel Study (QPS) with a group of twenty-two Polish migrants in Ireland. We first discuss the rationale for choosing a QPS to study Polish migrants in the Irish labour market. We argue that such a study represents an innovative methodological tool to examine the worklife pathways of migrants in a dynamic manner and to illuminate the new mobility patterns of East–West migration. We

in New mobilities in Europe
Theory and practice

Considering how to communicate your research or engage others with the latest science, social science or humanities research? This book explores new and emerging approaches to engaging people with research, placing these in the wider context of research communication. Split into three sections, Creative Research Communication explores the historical routes and current drivers for public engagement, before moving on to explore practical approaches and finally discussing ethical issues and the ways in which research communication can contribute to research impact.

Starting from the premise that researchers can and ought to participate in the public sphere, this book provides practical guidance and advice on contributing to political discourse and policymaking, as well as engaging the public where they are (whether that is at the theatre, at a music festival or on social media). By considering the plurality of publics and their diverse needs and interests, it is quite possible to find a communications niche that neither offers up bite-sized chunks of research, nor conceptualises the public as lacking the capacity to consider the myriad of issues raised by research, but explains and considers thoughtfully the value of research endeavours and their potential benefits to society.

It’s time for researchers to move away from one-size fits all, and embrace opportunities for creative approaches to research communication. This book argues for a move away from metrics and tick box approaches and towards approaches that work for you, as an individual researcher, in the context of your own discipline and interests.

This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods, and comprehensively covers all the basics needed for large-scale health research projects: systematic reviews; research design and analysis using both qualitative and quantitative approaches; health economics; research ethics; impact and dissemination. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). The handbook clearly outlines research practices, and gives an insight into how public and patient representatives can be involved in them and shape decisions. Each chapter ends with a reflective exercise, and there are also some suggested sources of additional reading. People who get involved in health research as experts from experience now have a textbook to support their research involvement journey.

Open Access (free)
Emotions and research
Hannah Jones, Yasmin Gunaratnam, Gargi Bhattacharyya, William Davies, Sukhwant Dhaliwal, Emma Jackson, and Roiyah Saltus

Living Research Two: Emotions and research Operation Vaken's posters, newspaper adverts, immigration surgeries and mobile billboards were a dramatic display, designed to reassure some citizens that the government was ‘getting tough’ on irregular immigration. However, the campaign also increased worries and anxiety. The survey carried out for us by Ipsos MORI of a nationally representative sample of 2,424 people (for

in Go home?
Helen Brooks and Penny Bee

Research dissemination and impact Helen Brooks and Penny Bee Chapter overview Research activity does not finish when data analysis is complete. Once research findings are available, researchers still have obligations to fulfil. These obligations include sharing the findings with different audiences and ensuring maximum impact from the study. A Research Handbook for Patient and Public Involvement Researchers Chapter 10: The process of sharing research learning with others can be an enjoyable but challenging one. Often it is referred to as dissemination, but

in A research handbook for patient and public involvement researchers
Open Access (free)
Ethics in uncomfortable research situations
Hannah Jones, Yasmin Gunaratnam, Gargi Bhattacharyya, William Davies, Sukhwant Dhaliwal, Emma Jackson, and Roiyah Saltus

Living Research Four: Ethics in uncomfortable research situations The ethical bottom line for sociologists is, ‘first, do no harm’. This can mean taking care that how we present our research does not add to raced, classed and gendered oppressions, and equally, avoiding a well-meaning shrug and a response of ‘It's complicated’. At its best, sociology takes seriously the personal, everyday struggles and inconsistencies of

in Go home?
A tale of two professors
Randee Lipson Lawrence and Patricia Cranton

6 Mentoring arts-based research: a tale of two professors Randee Lipson Lawrence and Patricia Cranton A rts-based research has tremendous potential to foster human creativity and bring about cultural and social change. Unfortunately, in our experience, graduate programmes in mainstream academic cultures may not always seek to foster creativity. Bringing the arts into graduate adult education research has the potential to breathe new life into what has become a fixed and often rather dull process. This chapter discusses this practice as it critiques and

in Lifelong learning, the arts and community cultural engagement in the contemporary university
Open Access (free)
Why are we doing this? Public sociology and public life
Hannah Jones, Yasmin Gunaratnam, Gargi Bhattacharyya, William Davies, Sukhwant Dhaliwal, Emma Jackson, and Roiyah Saltus

Living Research One: Why are we doing this? Public sociology and public life This short section is a conversation between an activist involved in the project 1 and a member of the research team. Each reflects candidly on the value of the MIC project to civil society and on social research (and socially engaged research) in general as a ‘public good

in Go home?
Clare Wilkinson and Emma Weitkamp

This chapter explores opportunities for publics to participate in the research process (as researchers rather than as the subjects of research or in the governance of research). The chapter examines the growing field of what is sometimes described as citizen science, but also called crowd-sourced research, amongst other terms. Because the terms citizen science and DIY science have become current, they are used here, but the approaches should not be seen as exclusive to the natural sciences (see, for example, Dufau et al. , 2011 and Dunn and Hedges

in Creative research communication