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Exploring assumptions around patient involvement in animal research
Gail Davies
Richard Gorman
, and
Gabrielle King

relevance and quality of research using the experiential knowledge they develop through living with a health condition. 8 Research involvement started with patient activism around clinical trials, where direct links were made between involving people in research and improving the relevance of research. Sociologist Steven Epstein tracked the work of AIDS activists and organisations in the 1980s ‘who challenged researchers’ approaches to conducting trials, which had overlooked patients’ preferred outcomes’. 9

in Researching animal research
Open Access (free)
Digital culture and personalised medicine
Anne Kerr
Choon Key Chekar
Emily Ross
Julia Swallow
, and
Sarah Cunningham-Burley

with science and business on profile raising and fundraising. These activities are amplified and monetised by traditional and digital media which ‘align with a consumer-driven model of digital patient activism’ (Petersen et al. 2019 : 489). Facebook and other social media platforms such as Instagram are where patients become involved in what Gerlitz and Helmond have called the ‘like economy’, where ‘like buttons enable multiple data flows between various actors, contributing to a simultaneous de- and re-centralisation of the web’ (Gerlitz and Helmond 2013: 1248

in Personalised cancer medicine